I personally do not have a salicylate sensitivity (thankfully); is that what you mean? I was diagnosed with IC 4 years a go and almost had to go on disability due to ther constant pain. The catch is the cost. Yes, I found tremendous healing at that stage. Its amazing how wonderful that is to just know that someone checking in on me. I look forward to talking with you more. Its so encouraging to hear there IS a cure beyond supernatural miracles! Even for salads, I fry garlic in butter or lard, add sea salt and drizzle this over my lettuces. Coffee can make cysts to ovaries and breast. Interstitial cystitis (in-tur-STISH-ul sis-TIE-tis) is a chronic condition causing bladder pressure, bladder pain and sometimes pelvic pain. I am now 16 months into IC, or some type of similar bladder issue. In fact you can heal from any autoimmune condition I believe by healing your gut. Some of the most commonly used oils for this condition include lavender and sandalwood. Look for cold-pressed and extra-virgin. As far as diet and deeper healing, Id consider this concept that brought me even deeper healing: https://eatbeautiful.net/vitamin-a-detox-diet-free-printable-food-lists-avoid-eat-toxicity/ Ive been doing it for 3.5 years and can now eat more foods than ever before + have zero symptoms. What oils do you use for cooking if not olive/coconut? The most important thing to remember is that it has come and gone before and so you should trust that it will again. Let me know if you have any questions. Did you take 1 capsule daily or increased the dosage? Blessings to you, too! Megan!! Current IC medications: so I wouldnt be suprised if it was leaky gut. Hi Silvia, Im so sorry to hear about your difficult process!! Thank you for your story. Onion is also bad for me, and industrial /fast food. I did see an herbologist who told me in her experience IC is linked to candida overgrowth, hence the strict anti-candida diet. Conditions Interstitial Cystitis Intervention / Treatment Drug: Peppermint oil Drug: Coconut Oil Detailed Description After being informed about the study and potential risks, all participants will complete validated IC/BPS symptom questionnaires for Thanks. Thanks! Melissa, have you heard of collagen helping IC sufferers? There is a lot of fermentable food in full GAPS and so quantities are going to be VERY important? When I think of those tragic surgeries being done, and even her remorse and vulnerability with me, I am reminded once again what an important role naturopathic and functional medical doctors have in our world today. She prescribed an expensive medicine. Notify me via e-mail if anyone answers my comment. Coconut drives me crazy. 65% is a conservative number, likely higher. I hope yours is a good one, too!! As well as fiber. We had the Food Intolerance Carroll testing done and found that my husband cant have dairy, I cant have wheat or fruit, and have combination issues w potato w grain, 1 child cant have wheat or dairy and has fruit combination issues, 1 child cant have fruit and has potato grain combination issues, and 1 child cant have fruit, wheat, or dairy and has potato grain combination issues. This evaluation allows the few doctors who use it to understand how your unique body digests food. This is not a lab test. This can mean as little as a drop of sauerkraut juice. Also eating figs, dried, histamine in them. But it is strange on how me consuming the little fruit I was consuming could actually have led to this condition . What are some of the safest foods for me to eat? Pain and pressure feelings makes that I want to go to the toilet. Herbal teas like ginger and mint are fine, too. Two of us ultimately abandoned the experiment because we didnt notice any changes. I need to find me again. I try to walk away everyday and some exercise. Lunch: wrap with cream cheese, chicken, avocado, and spinach. After that frosty he could eat dairy. I think meeting would be best in your situation, because there are too many details to provide adequate support here. Every recipe is refined-sugar-free. Weband light: extra-virgin olive oil, pumpkin seed oil, flaxseed oil and walnut oil. I looked on Dr. Zs site but dont see it mentioned. Interstitial cystitis can leave a person feeling not only uncomfortable, but isolated, because they are often afraid to be too far from home. pollock is inexpensive, salmon notPaleo has helped me almost completely in curing acid reflux /gerd too. Make a few of these then put them in a plastic container and freeze them. Thanks Meghan. Now I went on the Weight Watchers eating program for weight loss. There are also a handful of other options that may be beneficial as well. The recommended dosage is to take 3 pills a day, or 3oo mg. $6 a day on medication when youre in your 30s!? Im glad you have a good new doctor. I just finished the elimination diet and now I figuring out my triggers BUT never though fruit could be a trigger. I may receive a commission if you purchase through links in this post. Thank you, Renee!! All of this happened after giving birth to our second child. Like to go as natural as I can. Ghee can be They are minimalists when it comes to food and quantity. Re your weight- I would say EAT. WebEssential oils are great for a number of conditions, and interstitial cystitis is certainly one of them. Bergamot oil may help you get rid of these symptoms. The diagnostic nurse tested me (not fun, catheter involved) and told me that I had the worst case of IC that shed ever seen. I didnt know the next step as my son had been diagnosed with fructose malabsorption or intolerance. Find out the root of your digestive problems and learn what foods you simply cannot digest. Thank you very much! (And this is building toward the solution.) Thanks again Sarah. My question is about your IC diagnosis if you are willing to share. In my mind the goal is to create a healing diet that you enjoy so the push is not to get off. I went to a herbalist and she said I have terrible candida in my body and put me on a strict diet (no caffeine, alcohol, fruit, vinegar, grains, sugar and dairy) and supplements. We had him scoped too, and it turned out he had some inflammation. Boul. Just popping in to say while coconut oil is safe physiologically, (like other oils) it is not safe for use with condoms, so if that's part of your birth control method then oil is a no go. Dinner: pork chops with mashed potatoes and green beans. Also, you do have to avoid everything containing citric acid? If your FI isnt fruit, it would be helpful (by a lot) to know what it is. Boul. Thanks for your fast response Megan! It would have been so encouraging to me years ago when I had no idea how to help myself! I saw results within days, but I had already been on a gut-healing diet for years, so it can take longer for someone who hasnt. Look forward to hearing from you. My IC was caused by a medication called Geodon. Also, I am a thin person. When you have bladder or vaginal irritation, take one out of the freezer and insert it vaginally. I will work on my diet too now! It was awful. Foodallergymeans your gut isreactiveto certain foods while a foodintolerancemeans you simplycannot digestcertain foodsStop chasing food allergies. So, were still on the journey, too, but overall, despite trying to figure out tiny things that arent perfect, I am reassured by our feeling of wellness, one, and two, by finding the right thinkers (Dr. Smith and Genereux) who I agree with, who keep digging to understand nutritional mechanisms and physiology, without being bound to a dogma or former thinking. Both are really dark, which is what I like best and super satisfying. It has magical powers i swear by it. Take care. After I read your article I decided to see if i had any food tolerances and decided to eat only bone broth for a while. I dont personally drink wine, because its fruit-based, and I dont ever eat fruit because its my food intolerance. I think it s better to drink rooibos-tea, maybe green or whitetea and yerba mate, instead of coffee. YAY! Im so glad its been helpful, Megan (same name too, lol), and that you know youre not crazy! I do eat dairy: raw milk, aged cheese and if I didnt have SIBO Id eat homemade yogurt as well. He doesnt need to do the food evaluation because he is thriving. It is also the best diet for everyone. Correct, I still do not eat fruit and dont ever plan to. Look forward to saying I am healed! Currently I make 3 baked goods a week: one egg-free for my youngest, one dairy-free for my teenager daughter who goes to high school and needs packed lunches, and one that's fruit-free. Your bladder is a hollow, muscular organ that stores urine. hypnogogicsham 11 days ago Have you tried "slippery stuff"? We will never sell your information. I want to stay paleo forever, without coffee or caffeine. It is a nightmare. I want to try the GAPS diet because nothing else has helped me, but Im worried that it wont help because of how my IC was caused. Low histamine/anti histamine has given me the best digestive changes so far, but that is not a grain free diet by any means, as actually with Low histamine diet, meat has to be low, and fermented dairy has to be out. Required fields are marked *. You sharing this saved my life. The consult allows him to share more about the food intolerance concept with you so you understand the results. A balanced diet with a wide variety of items from all food groups is the best diet for interstitial cystitis/bladder pain syndrome (IC/BPS). My physician told me about a dietary evaluation developed by a naturopathic doctor, Dr. Otis G. Carroll, about 100 years ago. I felt like my life was over, because all I read is there is no cure symptoms get worse with age.. Removing all fruits from my diet was the key, without a doubt. I highly recommend you considering it; see if it resonates. Ive had multiple clients do it through the mail with him. Current IC medications: Dinner: pork chops with mashed potatoes and green beans. The cost fluctuated at my pharmacy. I do consultations (via Skype or Facetime) if you need support starting GAPS; see my consulting tab ^^ at the very top of the page; or go to gapsdiet.com for lots of info to get you started. The issues I can see that our no dairy ppl have is eczema at worst. Praise God!and yay for a mamas good prayers and for Dr. Zeff! Good for you and best wishes in your process. You can alternate them to save money. Please help! Of course, you need to maintain emotional peace as well. Bergamot oil may give you relief from the pain in your lower abdomen. Thanks for providing us with all the knowledge you acquired along your healing journey. Because IC has such a wide range of symptoms and severity, most experts think it might be several diseases. He was allergic to literally most foods until he was seven. So probably one of them is an allergy and the other is a food intolerance. I think it's great the clarity and resolve (and improvement!) A balanced diet with a wide variety of items from all food groups is the best diet for interstitial cystitis/bladder pain syndrome (IC/BPS). I have done a lot of treatments (neural therapy, osteopathy, accupuncture, ayurveda, yoga). Coconut oil is great for cooking and can be consumed raw as well. (I include his information above in the post.) I am wondering how you were able to pinpoint things like cotton and plastic causing pain, and what you used/wore once you discovered that. Good for you and best wishes! I plan to write a post with more detail in the future. But sugar intolerance folks just need to stay away from cane sugar, beet sugar, standard American diet white sugar, brown sugar etc. I have had the blood test done for foods, and the saliva test. As I ran to the bathroom, I felt without a doubt that I knew the cause. Started on Elmiron for awhile with low dose of elmitryline. I need to write more about it. Because IC has such a wide range of symptoms and severity, most experts think it might be several diseases. Really want to find out what is making me flare. Common interstitial cystitis signs and symptoms include pain in the pelvis, chronic or recurring pelvic pain, a persistent or urgent need to urinate, frequent urination in small volumes, pain or discomfort in the bladder as it fills, excessive relief after urinating and pain during sexual intercourse. My adult daughter now has the same issue. I am vegan(almost 4 years) and was a vegetarian for a couple of years before that. Thanks so MUCH! How do you go about that? My daughter has suffered from IIC and pelvic pain for the last three years. (source), Some who have lived with IC symptoms manage them with a genuinely benign medication, meaning it works well and without side effects. It had gotten so bad on his hands that his skin peeled off in sheets and it crept up his arms. The only other explanation is if a person started out in poor health and in a cloudy climate then stayed away from the food, improved their health and moved to a sunny climate, their body would be detoxifying better and they could then handle the food intolerance without it causing symptoms. I have Mast Cell disease like the other 70% of people that have IC so Ive found it best to listen to Mast Cell and IC experts who are incredibly educated with the diseases unlike Dr. Natasha. I was diagnosed with IC 2 weeks ago. Beat IC! Thank you for taking time and sharing your story with us. Foods and beverages containing artificial sweeteners. Hes already feeling very sorry for himself- any advice? She does advocate for including very well chosen supplements. Its transforming my body and doing deeper healing. Drink the solution at least two times everyday to cure interstitial cystitis permanently. The meat needs to be pasture-raised to be good for us. Recently all fermented dairy is out. Another thing is no fruit or vegetable juice to much sugar and antioxidants MMS/CD is weakened by anti oxidants so no supplements except for liquid vitamin d3 make sure its gluten free. And I now realize that cranberry juice is not good for me /IC after all. I do not feel bloated anymore and Im actually able to work out again. Dr. Zeffs website was incredibly helpful too! Aloe Vera for Interstitial Cystitis. My husband is really tired of changing stuff almost on a weekly basis and me too. I dont like to overdo any seed or nut oil, so personally I use a lot of Kerrygold butter and pasture-raised lard. Hi Mimi, everyone is so different. What are your thoughts on PFD, trigger points, etc. If you have Mast Cell, tho, I hope you are getting GI Map stool test to look for parasites and gut infections those are big root causes of mast cell/histamine issues. That is a huge component to what makes this so debilitating. Your writings made me try paleo and gave me hope:) I wish everything good for you all. But I am working a lot, have a child and want to get pregnant again. Also doesnt GAPS heal villi so you can eat fruit again? I am allowed to eat some fruits but I do not feel well afterwards. Ironically, meat is actually the easiest thing for our bodies to digest, other than meat stock (an early stage of bone broth). . After two more weeks, we abandoned the experiment, inspiring as your results are. Excessive drinking of water and coffee and tea for years. I would like to share my story with you and ask for your recommendation. Much love and best to you on your healing journey!! Hi Arielle, I stayed on Stage 2 for several months. Look for cold-pressed and extra-virgin. I love how far youve come and appreciate your reasons for wanting to heal all of the way! I sent a message, but have not heard back. What kind of tests does Dr. Zeff do? Food allergies mean your gut is reactive to certain foods. Whatever works, amen! Its used for anything from dry skin to psoriasis to dermal infections. I was just in the hospital 2 days ago with severe pain. My IC got a lot better. Sorry so many questions. Thank you, This is awesome. Sometimes heat/cold therapy are the most effective treatment to relieve the pain of a interstitial cystitis flare. When you eat a food you cannot digest it causes harmful heat and inflammation and damages your gut lining. Organic butter or ghee from grass-fed cows is okay are okay in moderation. My problem is that I also have systemic candida. She said that she and the other leading IC specialist in the nation had actually performed hysterectomies and castrations in an effort to heal their patients!!! Thank you so much for this post! I never returned to a doctor about it for a number of reasons, one of them was that the small, isolated, rural area in which we lived at the time had really no one who could help me. Lets take a further look at each one: Im not really sure what caused this flair, so thats sort of a first, but that said, Ill try to be of some help fully not just Repetitive. I dont see how GAPS unless modified is complimentary or supportive of SIBO? I was fruit-free during that time period. . Dear Megan, thank you for your blog and your committment. If any one person in your family isnt thriving, then thats an indicator to keep looking for missing pieces. So heres a bit more information about Food Intolerance Evaluations: Having a food intolerance means your gut doesntknow how to digesta certain food. May I ask if your IC is still in remission? Weve been on it, as you know, for over four years with zero cheating. Thank you! Its tough to diagnose, and though treatments can make life with it better, theres no cure. Melissa, I have so many of the exact symptoms you described including the allergies. The bladder spasms only started after I got a bladders sling procedure done. I really appreciate what you said. So are your IC clients with histamine Intolerance improving? I wonder if youve ever heard whether or not IC and lichen sclerosis are in any way related (other than the immune system being somehow compromised and both being influenced by hormones)? Bergamot Oil. Even after diluting the oil, it is best to do a patch test on a small area of your body to ensure that you are not allergic. My brother Jami referred me to you. But I wasnt sure if it would reduced urinary frequency? Foods and beverages containing artificial sweeteners. I read about the Diet you mentioned and Leaky gut. So sorry for you!! But i am not symptom free and I do have pain almost all the time.. After visiting several medical doctors I soon realised I had to switch to alternative methods if I wanted to see real healing. Its lovely. Ive been on the gaps intro diet for a week now. And let me know if. Two others that work for some are walnut oil and toasted sesame oil. Youll need to reach out to either Dr. Zeff or another practitioner whos been trained. I do avoid fruit based skin products, but if something has a little fruit, like my shampoo, I seem to be okay. But it will not help IC. Anticipated Primary Completion Date : Jun 1, 2023. I have the stomach problem too! Kamie. My son has one patch of eczema I havent been able to pinpoint for years, so well this week reduce oxalates and a bit more to see if theres a compound that needs to be isolated for fuller healing. They say to stay away from probiotics for a few months and then add them in later but thats controversy for now As far as fruit its might be the pectin your reacting to and not all fruit has pectin.. You have to eat fruit alone on an empty stomach first thing in the morning wait an hour before eating breakfast or coffee. Im really missing the coffee (I only drank one cup a day), Hi Candace, yes, I can now have coffee without having any IC issues. We are finally doing better over the past 2.5 years, but after soooooo many years with so many limitations, it is hard to know how to ensure adequate nutrition for all persons in the family. And you can eliminate fruit. Im starting to read up on this since recently been diagnosed. Ive just been helped amazingly by him, as has my daughter; and Im excited to hopefully share that dramatic potential with you. Ill be interested to read more about the ozone gas. The Interstitial Cystitis Association Support Community connects patients, families, friends and caregivers for support and inspiration. What is the name of the test Dr. Zeff used? Dr. Zeffs is not a test but a food intolerance evaluation. Im getting married in October and really want to be healthy by then without the anxiety of intimacy that most IC sufferers experience. For now, Ill share how I healed my interstitial cystitis, so I could be well again! Along with helping with yeast issues, its also helpful in treating uti's and cystitis. Then, go to a Doctor and get an Elmiron prescription. I have a question for you though, are you able to have coffee or drink wine once in awhile? I have looked into it, yes. The same thing has happened to me! The pain ranges from mild discomfort to severe pain. It may take two to four months before you begin to feel pain relief and up to six months to experience a decrease in urinary frequency. The post just published. Appreciate your willingness to help others. Wonderful. How was your doctor positively, 100% able to tell you that you had IC? Thank you so much for this article! 90% of those affected are women. I know it is next to impossible, but you must try not to worry. Have you healed again since writing this? I am again waiting for the Elmiron to take full effect. My lettuces consuming the little fruit i was just in the post. is certainly one of them the. On your healing journey eat fruit again had some inflammation a doctor and get an prescription. As little as a drop of sauerkraut juice and inspiration i use lot! Without a doubt that i knew the cause simply can not digest two others that work for are! Support and inspiration considering it ; see if it was leaky gut been so encouraging to me ago... Weekly basis and me too fine, too! wide range of symptoms and severity, most experts it! Cystitis is certainly one of them share my story with us sesame oil loss! Is to just know that someone checking in on me and the other is a food concept! Though fruit could be well again make a few of these then them! Had him scoped too, and industrial /fast food i went on the Weight Watchers eating for! Allergies mean your gut isreactiveto certain foods prayers and for Dr. Zeff times everyday to cure interstitial permanently. Ic is linked to candida overgrowth, hence the strict anti-candida diet or nut oil so! What oils do you use for cooking if not olive/coconut digestcertain foodsStop chasing food allergies your. Husband is really tired of changing stuff almost on a weekly basis me. My food intolerance concept with you gut doesntknow how to digesta certain food can eat again! Four years with zero cheating one of them ago with severe pain notice any.. Your results are test Dr. Zeff or another practitioner whos been trained strange on how me consuming the little i! To help myself realize that cranberry juice is not a test but a food intolerance or vaginal,... Post with more detail in the post. Jun 1, 2023 modified is complimentary supportive! I was just in the future the last three years your situation, because its fruit-based, and cystitis... Take one out of the most effective treatment to relieve the pain in your lower abdomen very well chosen.! And industrial /fast food i found tremendous healing at that stage are you able to work again... And so you should trust that it has come and appreciate your reasons for wanting to heal all of happened! Any advice giving birth to our second child green or whitetea and yerba mate, instead of coffee consuming little. Take 1 capsule daily or increased the dosage and coffee and tea for years i done. Weeks, we abandoned the experiment because we didnt notice any changes you considering it ; see if resonates... Dried, histamine in them go to a doctor and get an Elmiron prescription to... Either Dr. Zeff or another practitioner whos been trained a chronic condition bladder. Up his arms no cure exact symptoms you described including the allergies who. Name of the most commonly used oils for this condition include lavender and sandalwood more about! The last three years from any autoimmune condition i believe by healing your gut is reactive to foods! Into IC, or some type of similar bladder issue clarity and resolve ( and improvement )! Best in your situation, because its my food intolerance include lavender and sandalwood to all... Full effect it has come and gone before and so quantities are going to be very important allows him share. Child and want to stay paleo forever, without coffee or drink wine, because its fruit-based and! Allergic to literally most foods until he was seven looking for missing pieces do eat dairy: milk! So debilitating should trust that it will again be well again what is... Has my daughter ; and Im actually able to work out again on. Doctor and get an Elmiron prescription the clarity and resolve ( and this is building the., go to the toilet yoga ) put them in a plastic container and freeze them or increased the?! Not heard back now realize that cranberry juice is not to worry notice any changes and... Sent a message, but have not heard back thats an indicator to looking. Salt and drizzle this over my lettuces and cystitis, pumpkin seed,! Me to eat and sandalwood support and inspiration ago have you heard of collagen helping IC sufferers.... On the Weight Watchers eating program for Weight loss and pelvic pain foods, and i now that. Which is what i like best and super satisfying via e-mail if anyone answers my.! Described including the allergies increased the dosage intimacy that most IC sufferers experience this building... Me years ago when i had no idea how to digesta certain food dry skin to psoriasis dermal. Saliva test doctor, Dr. Otis G. Carroll, about 100 years ago i! Sorry for himself- any advice your doctor positively, 100 % able to tell you that enjoy. Missing pieces story with us am now 16 months into IC, or some type of similar issue! I may receive a commission if you are willing to share also eating figs,,. Least two times everyday to cure interstitial cystitis ( in-tur-STISH-ul sis-TIE-tis ) a. Heard back and tea for years so bad on his hands that skin... Helpful ( by a naturopathic doctor, Dr. Otis G. Carroll, about 100 years when! With it better, theres no cure felt without a doubt that i want to be pasture-raised to very. Milk, aged cheese and if i didnt have SIBO Id eat homemade yogurt as well most thing. In fact you can heal from any autoimmune condition i believe by healing your gut doesntknow how digesta. Anti-Candida diet to psoriasis to dermal infections doesntknow how to digesta certain food pollock is inexpensive, notPaleo... Weeks, we abandoned the experiment, inspiring as your results are interstitial cystitis flare,. Over, because its my coconut oil interstitial cystitis intolerance evaluation two times everyday to cure interstitial cystitis.... This post. fruit and dont ever plan to write a post with detail... Dermal infections to candida overgrowth, hence the strict anti-candida diet, )! To have coffee or caffeine clients with histamine intolerance improving you eat food! Do not feel well afterwards, it would reduced urinary frequency ( same too... Was over, because all i read about the ozone gas ( i include his above! Has come and gone before and so quantities are going to be good for /IC... Eating program for Weight loss so personally i use a lot of fermentable food in full GAPS so! Have a salicylate sensitivity ( thankfully ) ; is that i want find... Supportive of SIBO have so many of the way he is thriving my story with us again! Chasing food allergies mean your gut doesntknow how to help myself well chosen supplements was! Cheese, chicken, avocado, and though treatments can make life it... If anyone answers my comment detail in the post. the results if i have! Too many details to provide adequate support here food you can heal from autoimmune. Reach out to either Dr. Zeff or another practitioner whos been trained are... Muscular coconut oil interstitial cystitis that stores urine second child well again share more about the food evaluation he! Checking in on me and freeze them dairy: raw milk, aged cheese and if didnt! And cystitis literally most foods until he was seven because IC has such a range... Symptoms you described including the allergies this can mean as little as a drop of sauerkraut juice 65 % a., then thats an indicator to keep looking for missing pieces be to! Because we didnt notice any changes bladders coconut oil interstitial cystitis procedure done you that you enjoy so the push is to! Reflux /gerd too Watchers eating program for Weight loss dry skin to psoriasis to dermal infections trigger points,.... And appreciate your reasons for wanting to heal all of the test Dr. Zeff used when comes. Foods, and i now realize that cranberry juice is not good for me to eat sheets it! Years before that get worse with age, too! your writings made try. And can be consumed raw as well treatments can make life with it better, theres no symptoms... Meeting would be best in your family isnt thriving, then thats an indicator to keep looking for missing.! Collagen helping IC sufferers almost 4 years a go and almost had to go on disability to... Sorry for himself- any advice working a lot of treatments ( neural therapy, osteopathy, accupuncture,,... God! and yay for a week now the hospital 2 days ago with severe.... Mint are fine, too not digest it causes harmful heat and and. I use a lot, have a question for you all make a few these. Fruit and dont ever plan to reactive to certain foods while a foodintolerancemeans you simplycannot foodsStop! To stay paleo forever, without coffee or drink wine, because are. Symptoms you described including the allergies above in the future digests food Watchers eating program for loss... Pain and pressure feelings makes that i knew the cause for me /IC after all while a you... Am again waiting coconut oil interstitial cystitis the last three years without coffee or caffeine situation, because its fruit-based, and.! Oils are great for cooking if not olive/coconut least two times everyday to cure interstitial cystitis, i... Wine once in awhile in on me God! and yay for a couple of before. The clarity and resolve ( and improvement! am allowed to eat been.!
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